It is very hard for us help and respond to all charity requests, due to the amount of requests we receive, we have decided to help and support a single charity close to our hearts, NIAMHS NEXT STEP.
Niamhs Next Step
On Sunday 20th May 2012 our hearts were broken when our beautiful, brave amazing little girl lost her 18 month battle with Neuroblastoma. Niamh passed away peacefully in her mummy and daddy's arms. We will miss her more than I could ever explain but are so very proud of how she touched so many hearts around the world. Our little girl had become a bit of a star and now she really is the brightest star in the sky.
Neuroblastoma is a rare cancer that affects children. It develops from nerve cells called neuroblasts.
The cancer usually starts in the child’s abdomen (tummy). It often develops in the adrenal glands, the two small glands above the kidneys, and can spread to other areas such as the bones, liver and skin.
The cause is unknown. There are rare cases where children in the same family are affected, but it does not generally run in families.
Niamh's Next Step are very pleased and proud to once again be joint funding the United
Kingdom's annual levy to the European research network that carries out research into Neuroblastoma, the International Society of Paediatric Oncology Europe Neuroblastoma Group (SIOPEN). Along with Neuroblastoma UK, The Thomas Ball Children s Cancer Fund, The Henry Allen Trust, Smile with Siddy and Solving Kids Cancer.
This funding means that UK children will continue to have access to clinical Neuroblastoma trials and will also ensure that there is continued maintenance and development of the SIOPEN database, where all data on trials from the European countries involved in the High Risk Neuroblastoma study, is collated, analysed and used accordingly for the benefit of UK children with Neuroblastoma.
All donations go along away in helping the flight against Neuroblastoma, if you would like to make a donation to Niamhs Next Step please use the link above.